Sunday, October 23, 2022

September 2022 Part 1

This is a weird picture to post, but we were so happy to see that Zelda's poos were finally solid and not the diarrehea that we'd seen for 6 weeks.

Darrell, Tyler, Megan and I were able to attend a Carpenters Tribute show.  It was so fun to hear so many Carepentets songs.  The main lady really did sound like Karen Carpenter.

We had been keeping Zelda in the laundry room while we were gone during the day so Zelda wouldn't get her diarrhea on the couches.  We had to be gone all day one Saturday so we let Zelda roam the house, but we protected the couches with blankets.

We were able to attend the baptism of Carolyn and Alex in Nephi, Utah.

  

After the baptism we hung out at Derek and Tansy's house.  Tansy's parents and my mom and dad were also at the baptism so it was fun to be with them.

 

We were wondering what Zelda had been doing while we were gone.  All we could see was one pillow on the floor.

Emily had been complaining for a few days that she didn't feel well and couldn't breathe well.  On Sunday morning she still wasn't feeling well, so I took her to InstaCare.  Her oxygen levels were at 87%.  The InstaCare PA told me to get her to the Emergency Room right away.  We went up to Primary Children's Hospital and check in at the ER.  They gave her 2 albuterol treatments and a steroid in an IV.

 

Piggy was Emily's companion.  Emily had only had a KoolAid Jammer and 1 poptart for breakfast and was hungry so they brought her a snack-pretzels, fish crackers, string cheese, pudding and PowerAde.

After being there 2-3 hours and her oxygen levels weren't able to be maintained, so they admitted Emily to the hospital and up to the 3rd floor.

 

I went home to eat and pick up some clothes, ect. for the hospital.  I came back to find a stressed out Emily. Because Emily's body wasn't able to maintain a high enough oxygen level, they made her be on albuterol round the clock.  They would check her levels every hour and give her a score. She had to maintain a score of 4 for 2 consecutive hours before she could be taken off of it.  It also meant that she couldn't be given food or drink until the scores were high enough for 2 consecutive hours.  Poor Emily was so thirsty.  She could only suck off of a tiny sponge attached to a stick.  The low scores made Emily so anxious, which didn't help her to breathe calmly to help her scores.  I finally convinced her she should go go sleep so she wouldn't have to think about how thirsty she was and so her body could rest. My mom read her a bedtime story over the phone and then she got an anxiety pill to finally help her calm down.

That night in the hospital wasn't very restful for eiather of us.  I slept on couch that can be made into a bed and Emily had nurses come in all the time to check on her and to respond every time her oxygen got too low because she would push the mask off her face.

Finally Emily had 2 consecutive scores of 4 or higher and was able to be off of albuterol at 6:30 in the morning.  She was so happy to be able to order breakfast.  She had an omelet and bacon with apple juice.

They brought around some crafts and paint and that helped pass some of the next day.

For lunch Emily ordered pizza, french fries and smoothie.

Emily FaceTimed Tyler and Megan.  Megan didn't like seeing Emily's IV.

I went for a walk and saw a display case with some things from football great-Steve Young.

Piggy and Chelsea 

Emily watched TV quite a bit, but that wasn't always fun, so she was happy to do a puzzle.

For dinner Emily ordered a grilled cheese sandwich, mashed potatoes and gravy, a caeser salad and a smoothie.  

Emily's oxygen levels still weren't high enough on own where they felt she could go home, so we spent another night in the hospital.  That night was a little better because her oxygen levels didn't keep going down and making the machines beep.

She ordered biscuits and gravy, sausage and apple juice for breakfast.

For lunch she ordered pizza, mozzarella sticks and a smoothie.


Emily was able to get a shower and do some more crafts.

 

We found out in the afternoon that Emily would be able to go home.  She got dinner before we headed home.  She got an omelet, bacon, a caeser salad and a smoothie.


A picture of her "white board" where all of her scores were posted.


We had to wait for a while at the pharmacy for some meds, but then we were able to leave!!!  We were so grateful for the wonderful doctors, nurses, and technicians at Primary Children's.  They were so kind and helpful.